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    Last Updated: 01/09/2026

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    MediFind found 27 doctor with experience in Lafora Disease near Kansas City, MO. Of these, 22 are Experienced and 5 are Advanced.

    Location
    LocationClose
    27 providers found
      Advanced in Lafora Disease
      Advanced in Lafora Disease

      University Health Physicians

      2301 Holmes St, 
      Kansas City, MO 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Arthur Allen is a Neurologist in Kansas City, Missouri. Dr. Allen is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Memory Loss, Trigeminal Neuralgia, Movement Disorders, and Parkinson's Disease. Dr. Allen is currently accepting new patients.

      Advanced in Lafora Disease
      Advanced in Lafora Disease

      Ability Kc

      3011 Baltimore Ave, 
      Kansas City, MO 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ronald Fields is a Neurologist in Kansas City, Missouri. Dr. Fields is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Partial Familial Epilepsy, Partial Seizure, and Memory Loss. Dr. Fields is currently accepting new patients.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Ability Kc

      3011 Baltimore Ave, 
      Kansas City, MO 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Kosa is a Neurologist in Kansas City, Missouri. Dr. Kosa is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Migraine, Migraine with Brainstem Aura, Headache, and Memory Loss. Dr. Kosa is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Office

      3599 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Nancy Hammond is a Neurologist in Kansas City, Kansas. Dr. Hammond is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Memory Loss, Autosomal Dominant Partial Epilepsy with Auditory Features, and Generalized Tonic-Clonic Seizure.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Carol Ulloa is a Neurologist in Kansas City, Kansas. Dr. Ulloa is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Partial Seizure, and Memory Loss. Dr. Ulloa is currently accepting new patients.

      Experienced in Lafora Disease
      Neurology
      Experienced in Lafora Disease
      Neurology

      University Of Kansas Hospital Transplant Center

      3901 Rainbow Blvd, 
      Kansas City, KS 
       (3.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Utku Uysal is a Neurologist in Kansas City, Kansas. Dr. Uysal is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Epilepsy, Memory Loss, Autosomal Dominant Partial Epilepsy with Auditory Features, and Deep Brain Stimulation.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Kansas University Physicians Inc

      4000 Cambridge St, Suite G600, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jay Zwibelman is a Neurologist in Kansas City, Kansas. Dr. Zwibelman is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Stroke, Lafora Disease, Unverricht-Lundborg Syndrome, and Memory Loss. Dr. Zwibelman is currently accepting new patients.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      The University Of Kansas Hospital

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Patrick Landazuri is a Neurologist in Kansas City, Kansas. Dr. Landazuri is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Epilepsy, Memory Loss, and Partial Seizure.

      Experienced in Lafora Disease
      Neurology
      Experienced in Lafora Disease
      Neurology

      The University Of Kansas Hospital

      4000 Cambridge St, 
      Kansas City, KS 
       (3.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Vishal Shah is a Neurologist in Kansas City, Kansas. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Benign Rolandic Epilepsy, and Epilepsy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Meritas Health Corporation

      2800 Clay Edwards Dr, Medical Staff Services, 
      North Kansas City, MO 
       (3.7 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Larry Hollenbeck is a Neurologist in North Kansas City, Missouri. Dr. Hollenbeck has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Epilepsy, Tomaculous Neuropathy, Sensorimotor Polyneuropathy, and Andermann Syndrome. Dr. Hollenbeck is currently accepting new patients.

      Experienced in Lafora Disease
      Internal Medicine
      Experienced in Lafora Disease
      Internal Medicine

      Jayhawk Primary Care Inc

      2650 Shawnee Mission Pkwy, Suite 2201, 
      Westwood, KS 
       (5.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carla Aamodt is a primary care provider, practicing in Internal Medicine in Westwood, Kansas. Dr. Aamodt is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Follicular Lymphoma. Dr. Aamodt is currently accepting new patients.

      Experienced in Lafora Disease
      Experienced in Lafora Disease
      8800 W 75th St, Ste 100, 
      Shawnee Mission, KS 
       (9.4 miles away)
      Languages Spoken:
      English

      Michael Ryan is a Neurologist in Shawnee Mission, Kansas. Dr. Ryan is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Essential Tremor, Movement Disorders, Parkinson's Disease, and Infant Epilepsy with Migrant Focal Crisis.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Shawnee Mission Medical Center Inc

      9301 W 74th St, 100 Ahmg Hematology Oncolo, 
      Merriam, KS 
       (9.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alexander Fong is a Neurologist in Merriam, Kansas. Dr. Fong is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Memory Loss, Familial Hemiplegic Migraine, Sporadic Hemiplegic Migraine, and Stroke. Dr. Fong is currently accepting new patients.

      Advanced in Lafora Disease
      Advanced in Lafora Disease

      Providence Medical Group

      8919 Parallel Pkwy Ste 440, 
      Kansas City, KS 
       (10.5 miles away)
      Languages Spoken:
      English

      James Appelbaum is a Neurologist in Kansas City, Kansas. Dr. Appelbaum is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Unverricht-Lundborg Syndrome, Lafora Disease, Progressive Myoclonic Epilepsy, and Stroke.

      Advanced in Lafora Disease
      Advanced in Lafora Disease
      12140 Nall Ave, Suite 230, 
      Overland Park, KS 
       (13.7 miles away)
      Languages Spoken:
      English

      John Seeley is a Neurologist in Overland Park, Kansas. Dr. Seeley is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Dravet Syndrome, and Opsoclonus-Myoclonus Syndrome.

      Advanced in Lafora Disease
      Neurology
      Advanced in Lafora Disease
      Neurology

      Kansas City Neurology Clinic-Independence

      19550 E 39th St S Ste 200, 
      Independence, MO 
       (14.0 miles away)
      Languages Spoken:
      English

      Margo Block is a Neurologist in Independence, Missouri. Dr. Block is rated as an Advanced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Memory Loss, Epilepsy, and Partial Familial Epilepsy.

      Experienced in Lafora Disease
      Experienced in Lafora Disease
      901 E 104th St, 
      Kansas City, MO 
       (11.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Croom is a Neurologist in Kansas City, Missouri. Dr. Croom is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Seizures, Memory Loss, Generalized Tonic-Clonic Seizure, and Autosomal Dominant Partial Epilepsy with Auditory Features. Dr. Croom is currently accepting new patients.

      Experienced in Lafora Disease
      Experienced in Lafora Disease
      5100 Indian Creek Pkwy, 
      Overland Park, KS 
       (11.9 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Rawan Albadareen is a Neurologist in Overland Park, Kansas. Dr. Albadareen is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Seizures, Transient Ischemic Attack (TIA), Myoclonic Epilepsy, and West Syndrome. Dr. Albadareen is currently accepting new patients.

      Experienced in Lafora Disease
      Family Medicine
      Experienced in Lafora Disease
      Family Medicine

      Saint Lukes Physician Group Inc

      4801 S Cliff Ave, Suite 300, 
      Independence, MO 
       (12.4 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Francisco Aleman is a primary care provider, practicing in Family Medicine in Independence, Missouri. Dr. Aleman is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. His top areas of expertise are Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Aleman is currently accepting new patients.

      Experienced in Lafora Disease
      Experienced in Lafora Disease

      Kansas City Neurology Associates LLC

      19550 E 39th St S, Suite 200, 
      Independence, MO 
       (12.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kathryn Hedges is a Neurologist in Independence, Missouri. Dr. Hedges is rated as an Experienced provider by MediFind in the treatment of Lafora Disease. Her top areas of expertise are Parkinson's Disease, Migraine, Memory Loss, and Essential Tremor. Dr. Hedges is currently accepting new patients.

      Showing 1-20 of 27

      Last Updated: 01/09/2026

      What is the definition of Lafora Disease?

      Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

      When should I see a Lafora Disease doctor near Kansas City, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lafora Disease doctor near Kansas City, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Lafora Disease doctors near Kansas City, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lafora Disease doctors near Kansas City, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lafora Disease doctor near Kansas City, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lafora Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lafora Disease doctor near Kansas City, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lafora Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lafora Disease doctors near Kansas City, MO?

      Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lafora Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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